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After being pulled up by the Delhi High Court, the Centre on Wednesday said that it has operationalised a digital platform for crowd-funding for expensive treatment for rare diseases among children.
Additional Solicitor General Chetan Sharma, appearing for the Centre, stated that the portal, http://rarediseases.aardeesoft.com was in place. He assured the bench that efforts had been made to motivate PSUs and other corporate associations to contribute through this digital portal.
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The High Court had given an ultimatum to the Centre that it would be hauled up for “wilful non-compliance” if the platform is not set up. “I will hold you in contempt,” the Court had cautioned the Centre on a bunch of petitions on behalf of children suffering from rare diseases including Duchenne Muscular Dystrophy (DMD) and Mucopolysaccharidosis II.
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